Together achieving better decisions and brighter futures for Manchester families of children and young people aged 0-25 with Special Educational Needs and Disabilities (SEND)

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SEND Survey (Autumn 2017) Results

We shared a survey in November, asking fellow parent-carers to share what they think about the different Special Educational Needs and Disabilities (SEND) services available for their child/ young person. We have now collated the (anonymised) data, which we will present to various service providers across the city, as needed, to help inform them about their performance as perceived by parent-carers in Manchester. The information we received was also helpful in our completion of the SEND Implementation Survey, which was given to various Parent-Carer Forums (PCFs) across the country, to get a view of how local authorities are faring with regards to their implementation of the “SEND Reform Law” of 2014. We are now pleased to publish the results of this survey for all of you.

Listed below are the twenty one questions included in the survey, together with images showing a graph and a table of responses, as well as additional comments made in response to questions 4 through 21. Please click on a photo to make it bigger and click/tap on “Click this to view comments for this question.” to view comments.

Alternatively, you can scroll to the bottom of this article to view all graphs and tables in a single scrollable slideshow.

Q1: Please tell us the first 2 or 3 letters of your postcode – eg M4 or M40

Q2: What age range is your child or young person?

Q3: What is your child’s gender?

Q4: What type of education setting does your child or young person go to?

  • Special provision in Main Stream
  • None maintained special school
  • being education at home whilst on school roll

Q5: What type of needs has your child been assessed as having? Tick as many as apply.

  • PDA
  • Social communication disorder
  • verbal dyspraxia
  • Still being diagnosed
  • Aquired brain injury
  • H
  • FASD
  • He doesnt talk.
  • Down’s syndrome
  • Down’s syndrome
  • Epilepsy
  • Congenital CMV
  • cerebral palsy
  • Microcephaly

Q6: What is your child’s/ young person’s ethnicity?

  • Italian
  • Italian
  • Italian
  • British Pakistani
  • white British
  • Mixed Caribbean
  • Arab Somali once

Q7: Please tell us how well you think your child/young person’s needs are being met by Education? e.g. Schools, IAS, EHCPs etc.

  • Need more specialist input into mainstream setting
  • He is going school only for two hours
  • He is going school only for two hours
  • the school is amazing
  • First term at special School. Still adjusting
  • Support Staff need the actual qualifications not just a hand book and a days training they need proper training and need to be emotionally mentally and physically prepared for working with anyone with special needs
  • Speech and language therapy inadequate
  • Lack of understanding in mainstream schools, there is a lack of acceptance of what behaviours are ok and a lot is frowned upon
  • No support being given to nursery
  • EHCP has been applied for and nothing heard, he is attending pre school nursery but needs to be in a proper nursery that can help him.
  • Excellent educational needs are. Ring met by all the professionals involved in his care
  • I recently took my son out of school and we are now home schooling.
  • I have felt let down by services in the past but I am very proactive and find myself sorting a lot of things out myself meetings etc
  • Is in a recovery situation with multiple issues
  • The reason I am home educating my child is because his mainstream school placement was taken.away and he was offered an.inadequate placement at another school. LEA was not willing to pay for long term 1:1 that was needed. This is a failure to provide him with the equal, inclusive education we activists fought so hard for. Manchester has gone backwards on it’s duty to not put children in segregated provision. You will not educate him in his local community , so I will. That’s the biggest harm done to our kids.
  • They do not understand the SEN children
  • Only due to the educational setting that my child is in, mainstream does not work or chldren with special educational needs
  • My daughter has been recently diagnosed with high functioning ASD, sensory processing, anxiety, panic and depression. Mental health issues were a result of bullying in a private school and because she is very intelligent she received no support both in private school or mainstream school when struggling to cope in the school environment and people at school. It took 21/2 years for a diagnosis under HYM and still no therapy or support.
  • Been waiting approx 6 months for educational psychologist to see my son in nursery to do EHCP so I can get him to a school as he is 4 next month
  • At school by support great there is no issue. In terms of the LA meeting the deadlines of reviews etc. this is a high problem also they aren’t even looking through the proposed amendments properly I Am very disappointed and I have expressed this too them via my local MP.
  • The EHCP review was not as meaningful as it could have been as we were only given 2 weeks notice and some of the professionals we wanted to attend were not given enough notice, and therefore could not make it.
  • I don’t think the EHCP has as much power as we’re led to believe when they were being drawn up.
  • He is out of full time education and we have found it impossible to get ongoing support with maintaining and improving literacy and numeracy.
  • His special school is fantastic but the ehcp process is difficult to navigate and long winded
  • The school does not work with me. Because he is on meds’ he appears fine at school but at home it’s a different story.
  • Has been at this new independent SEMH school since April and doing fantastic; previous mainstream primary was quite the different story!!

Q8: Overall how satisfied are you with the ongoing monitoring and assessment of your child/young person’s needs by Education?

  • He is going school only for two hours
  • Like talking to a wall
  • Have to request progress meetings/reports
  • His school are amazing and are doing everything they can but “education” haven’t heard anything since his EHCP was done and even then it was me chasing and having to ask what else was needed. I never feelinformation comes freely from them, more rather that you have to know what to ask and squeeze them for it.
  • Because he is a high achiever academicly his autism gets overlooked and the pressure to do well increases anxiety x10
  • No support given to nursery no one bothered to tell me he was entitled to 25 hours and he has only been doing 15
  • Excellent service no complaints
  • I feel that we don’t actually review his plan and find we deal more with how he is doing struggling behaviours etc
  • Little knowledge of childs condition
  • Statement/EHCP has not been finalised since 2010 Manchester has been very lapsed in how they complete the process
  • I am now home educating my daughter as she received very little support in school. We are at Stage 2 of an EHCP plan assessment.
  • It would be good to get updates throughout the year in the home to school diary rather than just once a year in the teacher consultation
  • My daughter was in a mixed ability class in college, but would have made more progress if she was in a group with similar abilities.
  • No one checks her E H C plan to see if the college is following what’s slid out for her ,
  • Not forward planning enough/more time to plan for transition
  • No meetings, no reviews at MEA

Q9: How well do Education services and professionals work together to support your child/young person?

  • We meet talk buy nothing changes
  • Speech and language therapy is poorly organised and does not coordinate well with the class teachers
  • I have no idea how they interact in the back ground, again all the visible service eg SALT and OT work very well together in my sons school setting.
  • Over a year and the nursery has been given no support
  • All professionals work in the most exceptional way
  • School is amazing but there has been many difficulties like exclusions and I felt the old head teacher wanted my son out of the school due to his spikes profile and didntbalways feel supported. I had to contact educational case workers and IAS myself but found these services amazing
  • have limited knowledge
  • This is no longer relevant
  • our education case worker came out of a review and she said they just dont get it do they that sums it up for me
  • Very little correspondance across sectors
  • Education and services don’t work together each one is frightened of who’s paying what
  • The system needs to be more joined up with a holistic approach to our children
  • They don’t
  • Don’t think there has been time yet for any liaison, although his last EHCP review did take place within his new school; I have not heard from the LEA since he was placed.

Q10: As a parent/carer how involved are you in setting Education targets/outcomes for your child/young person?

  • Basically your made to feel like it’s all your fault and your not doing enough
  • Again his school are very good at sharing and keeping me up to date with where his progress is and what they are working on, they are also very receptive to taking my thoughts and feelings into account
  • The nursery staff try their best
  • Always consulted at every stage of development
  • We set our own appropriate targets Andy son is now thriving (In school he was distressed and self harmed)
  • My childs school works very closely with day to day targets and outcomes
  • I have given up my post as a teacher to educate my daughter in her final two years of her GCSE’s
  • I get involved but get no where
  • I am not contacted until problems escalated rather than being able to nip things in the bud.
  • I was a pilot on the EHC Plan so my child got a place where suited him but we had to fight yet again
  • They listen and act really well
  • I’m not involved at all
  • His targets are to do with SEMH needs rather than educational achievement – the one follows the other, and I am already delighted with the progress he is making in school, so I didn’t really get involved in that side of the review.

Q11: Please tell us how well you think your child/young person’s needs are being met by Health? e.g. CAMHS, SALT, Physio, OT etc.

  • All services great but wildly overstretched and under resources. Took nearly two years for my 11 yr old to get diagnosed and supported
  • Everything is done via the school.
  • Lack of regular input.
  • Waiting times too long, not meeting certain criteria to get a referral etc
  • Lack of funding and money and actual staff not agency makes things very hard
  • Have to always request involvement of health services, in particular SALT and Physio.
  • Even though my son has been managed by OT for well over a year, he was discharged and I was told if I ever needed them they would still be able to see him. I’ve recently needed their support but found it very hard to get a clear response/ answer in terms of who will see him and what support he needed. I was bounced back to school who passed on to the school OT but once again I’m left chasing with no support in the mean time
  • No speech and language referral and lonng wait times, lack of personalising support, lack of available people trained in this field to help
  • Just been told he should have been referred to ot this has never been done
  • he doesn’t engage and is not able to attend appointments in a clinic/hospital or busy setting
  • All professionals knowledgable about his needs
  • I have found CAMHS amazing and have dipped in and out when needed. I find them very engaging with my son and have helped a lot
  • More cancelations than appointments
  • Waiting on help with my son 2 help deal with his emotions and gow he reacts when angry
  • our worker is fab but has just informed us that because of the work load we will only be having one more appointment which is scary as my child hasnt reached teens yet and her problems are not likely to improve
  • Appointments are to long inbetween
  • CAHMS Bury has been awful and she has had very little therapy and support over the past two and a half years
  • He does not receive any further support for speech now he is in education the school provide this support however I don’t feel this is enough I would prefer seasons to be given outside of school.
  • OT is brilliant and the new Physio is a vast improvement on his last one
  • Waiting too long for speech therapy now she has left school.
  • The Bridge, camhs service have provided very good support.
  • Manchester have discontinued the provision of treatment for adults with congenital heart disease so he is not getting the support he needs
  • CAMHS discharged him after diagnosis; OT support is patch; but SALT is very good
  • Only because of me as a mum
  • He no longer has a Paediatrician irrespective of ongoing needs. This concerns me greatly as I have no reference point.
  • Physio needs are not met. No communication from them.
  • Not enough Physio being offered.
  • To make sure it works well I keep on top of each service and chase up my self when something isn’t working well ,
  • Needs daily physio but no ongoing training given to school – limited access to hydrotherapy
  • Our it is exceptional and really understands Sebs sensory needs
  • Biggest issue is specialist cancelling last minute
  • They don’t listen and they meet his needs
  • He is currently medicated for ADHD and we have regular review sessions to check how this is going. So far very good, and we are considering a trial break to see whether he can manage without them now he is in a supportive school setting. I’m happy that our concerns are now being listened to, although initially when we had to decide whether or not to medicate, I didn’t feel that I was given enough advice; but his psychologist and a new psychiatrist helped us to make a decision and it has proven very beneficial.

Q12: Overall how satisfied are you with the ongoing monitoring and assessment of your child/young person’s needs by Health?

  • Health have not been involved for a while and do not attend annual reviews
  • It’s hard to get an appointment when you do it could be weeks/months away and is. It very long and then the next is weeks away again it’s just a joke
  • Our community paediatrician has been invaluable and is the only professional I rarely need to chase
  • Lack of staffing means service is almost none existent
  • Uptodate will information about my child’s health
  • My son has never seen the GP. I found community ped excellent. I found the health weight management terrible and to be honest a waste of time. I found ABI a fantastic service and loved the sessions with my son however they have not followed up with us like they said
  • Since diagnosis I have not had any communication from paediatrician or physchologist to see how he is progressing do I have any concerns etc.
  • Health will not participate in plans so they might as well be called education plans
  • He has nobody monitoring his health and development
  • As I feel I make it work my self by doing what needs to be done and. Having people to make sure it happens and she gets all the services I know she needs its hard work ,
  • I have chase the gp to monitor my son
  • As above
  • Was a little worried at start as renovation of the centre and lack of resources at the GP clinic meant he started medication without medical checks, however he has been checked since and doing fine.

Q13: How well do Health services and professionals work together to support your child/young person?

  • We meet once a month but it’s more of a score points or who was right in the 1st place
  • I never feel my sons diagnoses ar ever communicated properly between services they see AHD and stop there when in fact that’s a small part of my sons issues when he has a genetic disorder and isn’t necessarily ASD typical (if there even is such a thing)
  • Lack of ongoing dialogue
  • They are fit like a glove, nothing but admiration for them all
  • although my child has a one page profile explaining their difficulties these are not read before hand and often lead to me having to tell them of my childs difficulties in front of them which can lead to severe reactions form my child
  • Quite well in the diagnosis pathway afterwards none existent
  • Very bad because they don’t work together
  • Nobody communicates!!
  • Again physio input is poor
  • Again I co ordinate things my self I always have done and will do ,services take to long when they say they will get back to you ,I end up. Having them my self it’s very frustrating at times ,
  • None of the health services liaseproperly just do own thing -have been given conflicting advice
  • Not involved in transition Especially SALT they won’t plan for the change from children’s to adult services
  • Camhs don’t communicate with school (carol Kendrick)
  • There doesn’t seem to be much if any communication between occupational therapy and CAMHS; this isn’t an issue for us as his OT is more of a school concern, but it reflects how different aspects of a complex disability are handled by different services and don’t necessarily come together – a more cohesive and cross-discipline report would better inform the EHCP.

Q14: As a parent/carer how involved are you in setting Health targets/outcomes for your child/young person?

  • I can only try my best
  • Have to request involvement. SALT targets are not monitored routinely and no effective strategies put in place as a result of it.
  • I don’t believe we have ever had this
  • I involve myself in all meetings
  • Always involved and listened to
  • No one listens or helps
  • I help my son with health needs and appointments
  • It’s very difficult to be listened tol
  • I know what my daughter can and can’t do and what she can achieve with a push forward ,so I like to be involved in all the settings of her targets to make sure they listen to me ,and work together ,

Q15: Do you receive a Short Break?

  • It helps with the pressure of me and give me a break
  • It means my child can access activities with other children who have a disability.
  • Allows Mr to give my daughter special times. She also has a disability
  • No it has not because my son hates goin out with the carers
  • It’s a huge difference but feel you really have to fight just to receive the bare minimun support, we shouldn’t be made to feel like we are asking for too much. There are also huge differences in the packages people receive depending on who they talk to.
  • Still waiting for it to start I received a call it in September 17 and nothing I call and get someone will call you back and nothing still
  • Very big difference. We use it to send the children to summer school club
  • more quality time with the siblings
  • This has allowed us to participate in activities we otherwise couldn’t afford on a regular basis allowing my son to take part in specialist run activities that he wouldn’t be able to participate in. It has also allowed us to mix with other parents in similar circumstances which is Something we wouldn’t necessarily come across.
  • I have only just found out about short breaks !!!!
  • A life line.The two hours we get are like gold dust. I can give time to my younger children.
  • Very important in giving us space to catch up with sleep, other family members.
  • Respite is essential to allow us as a family to rest and recover to be able to provide 100% top level care and parenting to a child with such needs
  • A great difference really gives me the career and parent a break
  • it is difficult to get more support
  • Helps with all aspects of his development
  • My son has poor coordination and fine Motor and struggles so we accessed the funding to support This he has used the funding for pottery lessons and guitar lessons skills
  • My son is able 2 access karate and to help with out of school holiday club
  • Helps to pay for his extra activity and grading
  • Great difference as it allows me to have a break
  • I have to tell you that we find the support provided be Time Specialist Babysitting. It has been just the support we needed to ensure we can be together full time, but he gets breaks from that. Their service has been the only support which worked for us, he didn’t like the communal clubs
  • My child had a computer, is more involved into reading and write and spelling check, is help him to learn other language, he learns about a social skills
  • Enables me to carry on looking after my child
  • better control of behaviour
  • I did earlier this year. Its quite beneficial.
  • Once time
  • It’s made a huge difference, helps me to keep my sanity and to have that break and do something else for a change
  • we receive £750 per year to pay for Venture Arts – fantastc
  • Enabled my child to become more independent and gain confidence.
  • Completely necessary as a single carer with no support network
  • A special needs group gives my daughter a chance to meet up with her friends, she only has friends at college & club.
  • Well needed break.
  • It means my son can have focused play time rather than being bored because we as parents have other demands.
  • But insufficient break is provided
  • None at moment as haven’t been able to use it due to son’s illness
  • lots of assessments, we had to bear our souls to beg for support and given minimum to try to keep our heads above water, lots of stress & too much paperwork for direct payments
  • It’s a brilliant asset to our family life. It has widened our support network and given my son confidence.
  • Yet to use. Awaiting payment.
  • I get 6 hrs a week and it’s priceless as I’m a single parent
  • Good when received but ran out in July but not contacted by then to see how to renew
  • Gives me a break & allows me to have time with my daughter
  • Direct payment budget it’s made a huge impact it gives us a break and him his independence

Q16: Have you had a social worker in the past 12 months?

  • currently working on getting short breaks…he communicates very well!
  • Very good
  • No the social worker only contacted me to discuss my son short break. And than she made arrangements to have carers take him out.
  • Very supportive. Problem is with the managers/decision makers who refuse to acknowledge the evidence brought by all the professionals – edu/CAMHS/sw
  • Which one in one year I’ve had 8 and one just never came back to work during had my files still not found her I’m told
  • I’m a foster carer so having a social worker is part of the ongoing support for the young person
  • But not for my son it was for my daughter their involvement was poor and we were very disappointed that they were safeguarding appropriately
  • NO
  • NONE, other than ticking the boxes NO PROPER INPUT
  • Right now we don’t need one because the right support is in.place to avoid crisis
  • ???? is this a trick question have tried to get a social worker many times but it seems we don’t meet the criteria even when suicidal
  • We have never had a social worker
  • Social Worker has helped to get the support which was very much needed
  • Social worker useless, never available, cancelling meetings, u turn on plans all the time.
  • Not at all! Lots of ongoing issues.
  • Hopeless. Does not return calls/emails. Visits rarely. Has been completely ineffective. 1 complaint went to Ombudsman, we now have another complaint sitting with the Council.
  • Not much as they have changed several times
  • Only see a social worker if you have a problem then your lucky if you get one
  • lots of home visits and appointments, not enough information given
  • Social worker was not provided for my sons needs. I was refused one.
  • My child is nearly 5 years old and has never had a social worker involved and no one has ever approached me, I have tried to find out wether we are entitled to one and have continuesly been told that they are short on social workers and that because my child is well looked after we don’t need one
  • Yes, she is a god send and is extremely good in assisting with our needs as a family
  • More support
  • I have a care manager
  • Managed to get me support in the mornings so I can get all the kids ready on time for school
  • Never come to any statutory meetings they do not partake in joined up working minimal input
  • Never

Q17: If your young person is aged 14-25 years old, please tell us how your experience of transition/ preparing for adulthood has been to date.

  • Preparing for transition to sixth form- just starting now. Will have more to add soon. At present, I don’t feel much is going on.
  • NIL
  • As my child is only 14 perhaps he’s too young to start the discussion with ourselves. I’m hoping we’ll get much more info as the time goes on. It is something I’m anxious about as I don’t know yet what options there will be for our young man.
  • N/a
  • School also begun to assist with this .
  • Totally inadequate transition support from Mainstream high school, no travel training or life skills prep.
  • Total lack of support – we feel ‘dumped’ in adult services without proper planning or support
  • Not applicable, but that’s not an option
  • Transition do not know what they are doing and need training because they are a joke I was lucky to have one who is good but while she was off on leave they gave me a man who didn’t know what he was doing and was bad at his job
  • It’s been okay ,but I have always worked with all the services and organised all her meetings and set some of them up my self ,I feel I have to ask all the people my self who are involved with my daughter to come to meetings and what we want for her in preparing for adulthood ,it’s a big step and they have to get it right so my daughter is doing what her choices are and being at the centre of this ,and having her say ,people don’t always listen to our young people ,they sometimes assume they know best and make disisions for them ,we all need to work together as a team and all use our communication skills
  • N/A
  • They didn’t listen you they didn’t support my son there was a huge breakdown in the system and I was the one who found the college and pushed for the placement and made sure his voice was heard

Q18: How easy do you find it to get information about what services are available and what they do?

  • Via the local offer
  • You have to know where to look also the professionals don’t tend to tell you what is available, it usually gets passed on from other parent carers.
  • Other than the local offer (which is still a bit clunky and not very user friendly) I rely on google to look for most things. Parents don’t know, what they don’t know and this is the problem.
  • Don’t know what’s available usually unless another parent or carer tells me about it.
  • I work for early help and find a lot out through my job role
  • Talbot house is our suport and information
  • It’s hard to find information about local services.
  • Manchester’s Family Services directory is not user friendly
  • Very hard to find information the best thing was the map booklet but that went all the good services go
  • My experience, and that of other parents I have spoke to, unless you research yourself you are not told about a lot of services available.
  • Families find it hard to find out the basics as services don’t always volunteer information and can make it suite hard for families if they’re newly diagnosed it can be very lonely and frustrating out there ,
  • It has become easier as I have become more knowledgeable through research, meeting others etc. – at the beginning when he was first diagnosed, it was a lot to take in and not a lot of advice given. I only by chance found out about and got onto the Riding the Rapids post diagnostic course, which was excellent, but I could so easily have missed out.

Q19: Have you heard of the SEND Local Offer?

Q20: If you have used the SEND Local Offer did you find the information you were looking for?

  • it knock me off the site all the time
  • Had training on this as a parent champion
  • As a LAC child, I was informed not entitled to this offer due to having an overnight short break as part of the care plan
  • SEND LOCAL OFFER not always relevant
  • The website was too corporate and it was not user friendly
  • Not needed but available
  • N/A
  • N/A
  • I have met an advisor from Sendi
  • I don’t here this
  • I have looked on the local offer for leisure/ social activities and due to the complex nature of my childs needs there is simply nothing on there she can access.
  • Local offer not easy to get into and when you do there isn’t much in the north and most are shut because of cuts and the phone numberserk are out dated
  • We all still have trouble trawling through the local offer ,
  • Frustrating takes too much time to find what I need
  • This was quite some time ago, I’m aware that it’s an ongoing project which has changed since I first looked. To be honest the experience put me off trying again!

Q21: As a parent/carer do you feel you need any extra support?

  • short breaks will be helpful
  • Biggest difficulty is accessing sufficient Camhs services, finding the right School, enabling School to provide a more flexible attuned response
  • make the site easier i have 2 young children with special needs so never know whats on offer
  • Help to manage violence and improve relationships
  • Access to Camhs and extra sessions from OT. More support in hospitals, GPs etc
  • targeted information about support that is available. Wading through stuff is dispiriting.
  • Respite
  • Support with respite, more short breaks allowance, emotional support for parent carers.
  • It’s professionals time my son needs which he hasn’t I’ve been under CAMHS early all there life’s and they’ve seen physchologist 12 times and not in the past year at all
  • Help in finding out what is out there
  • Council run holiday clubs that have specialist support in place. Activities around the city are either not relevant, too far in between and not long enough. There needs to be a specialist support care centre for children to go to for e.g. in the holidays and when parents need respite
  • more respite
  • To help childrens emotional well being
  • We need carers group in Cheetham Hill. Have one for adults at Cheetham Medical Centre. Moss side is not near, especially if you don’t drive.
  • Support in all areas
  • more short breaks
  • At present we have applied for a secondary school place which has been really difficult and stressful and the waiting now iis worse. I worry about the transition and how my son will get there and cope. I want to try and let him have independence but worry about that
  • Way’s too understand and get through the minefield of Assessments, EHCP , find it difficult too understand opinons of other’s who have never met the parents or child needs too be better understanding and working partnerships.
  • To help manage my sons emotional needs
  • No but I would be very interested in supporting the LEA to stop segregation of young disabled people. There’s nothing happening in the segregated provision which can’t be done elsewhere, it’s a choice. The second highest cost of which is transport. Give our young people a chance to stay in the community. See NEWHAM and think.about being groundbreaking instead. You would have the support of the disabled people’s movement incl those of us working at GMCDP . Thanks. Dennis Queen
  • Support to get through all the processes to get the support my child needs
  • With education
  • Services do not work together. School are not interested in what my child behaviour is like at home. This makes it difficult.
  • Information on what help is available
  • I’ve needed quite a bit and various govt agencies were very helpful. II’ll always need extra help & advice from time to time.
  • We definitely needed more emotional support in th eperiod after diagnosis. We would have really benefited from a key worker who could have got to know our family circumstances and could have sign posted us to relevant services. Without this we were left on our own to try and work out what was best for our son at a very stressful time
  • About situations in my house.over loaded.and I have a letter from school doctor.
  • More respite, Saturday club available through the year, not just term time
  • appropriate school to meet our son’s needs, preferably an outstanding mainstream school that understands and implements outstanding inclusive practice.
  • No support network and therefore having to work and carer for a disabled child and meet all the required needs is impossible on a day to day basis.
  • My child has been out of education since March 2017, still waiting on an EHCP plan to be sorted and a school to be identified to meet her needs.
  • Support with planning for the future and respite for me
  • Get help to get him to bed.
  • Short Break / social care support. We currently receive the bare minimum, despite our son’s multiple and challenging disabilities.
  • We need qualified people listening to us not people coming in our homes talking down to us we parents are the ones who deal with our sons and daughters on a daily basis 24 hour
  • specialist child care to enable me to continue working, easier access to short breaks and support to enable us to stay together as a family
  • I would like support in accessing opportunities for me
  • Transport to and from school. Direct payments to bring a part time carer in.
  • For my daughter she need much of financial and outdoor support and me as a mother need a break
  • We don’t always know what we are entitled to ie equipment for my child as I have been told I need to buy it myself
  • More Physio and access to weight management that is tailored to my sons needs
  • Being a Carer is a hard work ,we all need help and support at time ,counselling would be nice to have ,easy access to all the services ,and where all services are based and what they all represent with helpful phone numbers ,someone to listen to ,a sympathetic ear. Compassion ,understanding of our circumstances ,working in partnership
  • School transport and assistance with personal care needs
  • More respite care
  • More respite
  • Respite – a breather
  • Not any longer, but I would like to say that when he was much younger, both before and just following his diagnosis, I could have done with a lot more support.

A massive “Thank You!” to everyone who took time to respond to our survey. Our collective views are vital in helping shape and influence the services that we all use as families of children and young people with SEND. Together, we can achieve better decisions and brighter futures for families of children and young people aged 0-25 with SEND in Manchester.

Summary of SEND Survey Responses:

By | 2018-01-24T15:34:13+00:00 January 24th, 2018|Categories: Parent-Carer Feedback|Tags: , , , , |

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2 Comments

  1. Rash January 28, 2018 at 2:12 am - Reply

    How many were surveyed?

    • webmaster January 31, 2018 at 12:11 pm - Reply

      Hi. We received 105 responses.

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