Together achieving better decisions and brighter futures for Manchester families of children and young people aged 0-25 with Special Educational Needs and Disabilities (SEND)


According to St. Clare’s Hospice, a charity that provides care and support to adults with life-limiting illnesses, their families and carers:

Life-limiting illness is a term used to describe an incurable condition that will shorten a person’s life, though they may continue to live active lives for many years. There is a wide range of life-limiting illnesses, including heart failure, lung disease, neurological conditions, such as Parkinson’s and Multiple Sclerosis, and cancer that is no longer responding to treatment intended to cure.”

Together for Short Lives has a list of categories of life-limiting conditions on their website.

The International Children’s Palliative Care Network (ICPCN), on the other hand, published a directory of life limiting conditions in children.

Below are some articles we wrote that relates to life-limiting illnesses and conditions:

Paid Involvement Opportunity for Parents and Carers

We have recently been approached by the Helix Centre, who are looking for family members with lived experience of caring for a child with a life-limiting condition to test two mobile apps designed to support parents, family members and other carers to help other families.

By |2020-05-16T17:31:20+01:00May 16th, 2020|Categories: Information Sharing|Tags: , , |